The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the livesof people with tuberous sclerosis complex (TSC). We drive research, improve quality care and access andadvocate for all affected by the disease. The TSC community is our strongest ally. The collaboration ofindividuals and families, along with the partnership of other organizations, fuels our work to ensure peoplenavigating TSC have support—and hope—every step of the way.
- We use a comprehensive approach to improve quality of life for people with TSC—fueling promisingresearch while making sure that, day-to-day, individuals are diagnosed early and receive the highestquality care available. We also use our voice in policy around equitable healthcare access and federalfunding for TSC research.
- Our work wouldn’t be possible without the commitment of our community. Advancing research requiresdedicated investigators, individuals with TSC, government and industry. Improving quality of and access tocare demands healthcare professionals and dedicated volunteers. Raising awareness requires the work offamilies, individuals and volunteers.
- We strive to create an environment where all individuals feel included, our organization reflects and servesthe broad diversity of our community, and we bridge health inequities.
- We bring together thousands of supporters to fuel our mission. We aim to fundamentally transform ourdonor base and increase funds available for research, community programs and advocacy to create abrighter future for everyone impacted by TSC.
With an annual budget of $9.2 million, the TSC Alliance advocates with and on behalf of our community toensure everyone living with TSC has what they need to live their fullest lives.
The major goal for the Development Department is to dramatically grow our revenue sources, particularly frommajor donors, corporate partners and private foundation grants. While revenue growth is vital, we are alsomindful of maintaining appropriate fundraising ratios and as an organization, prudent about staying within orbelow budgets for fundraising expenses. We are also implementing a major research campaign, the 50Forward Fund, to raise significant funds for emerging and important research. This must be conducted withoutjeopardizing our general operating funds needed to keep the doors open and to continue important services.
Reporting to TSC Alliance’s Vice President of Donor Relations, the Major Gift Officer (MGO) will manage,nurture, and enhance relationships with an individual portfolio of 75-100 prospects to improve probability ofcontinued and increased support of TSC Alliance. Ultimately, the MGO will build a major gifts program toidentify, qualify, solicit, and steward prospects capable of making gifts of $10,000 or more and to provideopportunities to match donors’ interests with TSC Alliance priorities. The position requires that the majority ofthe MGO’s time be spent interacting with donor prospects.
ORGANIZATIONAL STRUCTURE AND INTERFACES
- Reports to: Vice President of Donor Relations
- Primary Interfaces (internal): Vice President of Donor Relations, Senior Manager of Annual Giving and Partnerships, CEO, Chief Financial Officer, Senior Director of Communications, Director of Community Programs, Senior Manager of Development Systems, Development Coordinator, CSO, Vice President of Translational Research
- Primary Interfaces (external): Community volunteers, major donors, corporate partners, vendors, individuals with TSC and their families/caregivers
MAJOR FUNCTIONS
- Lead the process of identifying, cultivating, soliciting, and stewarding major gift and planned givingprospects to ensure that comprehensive campaign goals are met.
- Lead the development and execution of solicitation plans with an emphasis on personal face-to-face visits.
- Work in conjunction with the CEO, CSO, Vice President of Donor Relations and other members of theDevelopment team to identify, visit, and evaluate prospects; develop strategies to cultivate and updateprospects on key TSC Alliance initiatives; solicit prospects for annual giving, and as appropriate for capitaland endowment gifts; tailor solicitation proposals; provide prospects with planned giving ideas andillustrations as appropriate; steward prospects, involving other TSC Alliance representatives as naturalpartners when appropriate; and engage volunteers for special fundraising projects.
- Develop a tiered system of major gift prospects and facilitate the movement of those prospects through thevarious stages of giving based on a moves management model. In addition, the Major Gift Officer will meetclearly outlined weekly, monthly, and annual performance expectations based upon industry standard bestpractices for prospect visits and dollars raised.
- Participate in regular prospect management committee meetings; strategize consistently with the CEO,CSO, Vice President of Donor Relations, Board of Directors, and fellow staff members as appropriate;prepare written strategies to cultivate relationships that will lead to solicitations and stewardship of majorand planned gifts; and ensure timely and appropriate acknowledgement of major and planned gifts.
- File timely prospect reports in Raiser’s Edge documenting contacts, solicitations, and meetings and runreports to track progress of each prospect’s cultivation plan.
- Attend key TSC Alliance events to interact with donors and prospects as well as keep apprised of timelyand relevant information in order to create solicitation proposals.
RESPONSIBILITIES
- Develop and implement solicitation strategies, including e-communication, donor reports, cultivation touchpoints and stewardship opportunities.
- Work with the donor relations staff to ensure timely and acknowledgement of all gifts and appeals.
- Perform monthly analysis of effectiveness of the program and suggest opportunities for improvement.
- Implement communications strategy that cultivates donors and garners increased gifts.
- Assist with development of funding proposals and grant reports.
- Prepare major donor acknowledgements.
- Prepare gift annuity requests for TSC Alliance Endowment Fund.
- Prepare regular development reports, including major donor stewardship reports and other reports uponrequest.
- Assist in the overall strategic planning and managing of the organization's strategic development initiativesand annual giving programs.
- Coordinate with the Senior Director of Communications on a variety of projects that acknowledgeextraordinary contributions and highlight organizational accomplishments including, but not limited to,public and media relations, social media posts, product development, marketing, promotion, grants,brochures, or e-mail blasts.
- Represent the organization at special events and other public functions.
- Act as a team player and communicate development information within the organization.
- Maintain positive relationships with volunteers, colleagues, Board Members and other constituents.
- Other duties as assigned as needed.
CORE VALUES
- Build Value-Based Relationships: Generating alliances internally and externally by continuously identifyingand acting on those things that will create success for the organization and its constituents, researchers, healthcare professionals and communities.
- Contribute to Team Success: Actively participating as a committed member of a team and working with otherteam members to help complete goals and deliverables.
- Customer Focus: Making customers (external and internal) and their needs a primary focus of one's actions;developing and sustaining productive relationships; and creating and executing plans and solutions incollaboration with team members internally and externally.
- Provide and Accept Feedback: Objectively observing, analyzing, and sharing perception of other people'sperformance to help reinforce or redirect behavior to improve performance and results and providing feedbackthat is timely, specific, behavioral, balanced and constructive.
- Work Standards: Setting high standards of performance for self; assuming responsibility and accountabilityfor successfully completing assignments or tasks; and self-imposing standards of excellence rather thanhaving standards imposed.
- Consult: Providing timely, specific information, guidance, and recommendations to help volunteers,Community Alliances and fellow staff members make informed committed decisions that will lead tosustainable impact.
- Establish Collaborative Working Relationships: Developing and using collaborative relationships toaccomplish work objectives; developing relationships with other individuals by listening, sharing ideas; andappreciating others' efforts.
- Equity, Diversity and Inclusion: Ensure equity, diversity and inclusion permeate our organization and ourwork.
Successful completion of the projects noted in the success factors above requires cooperation with our staffteam, board, volunteers, donors and key corporate and foundation partners. Quickly establish workingrelationships to complete projects as described above.
QUALIFICATIONS
- Bachelor’s degree (preferably in Communication, English, Journalism, Marketing, or other related field).
- Five or more years of experience in fundraising, including a proven track record achieving fundraisinggoals, particularly with major donors and grants.
- General understanding of charitable solicitation regulations.
- Excellent written and verbal communication skills as well as organizational skills and the ability to jugglemultiple tasks while working under deadlines.
- Experience with donor prospect research and moves management.
- Experience working with volunteer committees and boards of directors.
- Proficiency in MS Office (Word, Excel, Access, etc.)
- Proficiency in Blackbaud Raiser’s Edge (or similar) database.
- Must be comfortable with public speaking and have strong interpersonal skills.
- Willingness to travel as well as ability to work a flexible schedule, including evenings and weekends.
